I obviously haven't been very good about keeping the blog updated. But, things are changing again so I will make an effort to keep this up to date.
John has been on 225mg of Zonisamide (taken in the evening) for quite a while now. He continues to have small "head nod" seizures throughout the day and a bigger seizure (with vomiting and ultimately sleep) once every 1-3 weeks. So, things have been pretty good, but not great.
Lately, John's behavior has become more of an issue than the seizures. He get's aggravated easily and cannot be calmed down. And, he is getting bigger which makes it harder for us (especially Yoshie) to handle.
We had a scary situation happen recently that made us realize that we need to make some changes to keep him safe.
Yoshie was driving our minivan, and was turning left from Cornell on to 185th (a very busy intersection). As she slowed down, John undid his buckle and went to the opposite side door and got out! Yoshie tried to stop him, and ended up hitting the car in front of her (only slightly, no damage). But, John still escaped and took off down Cornell barefoot. Yoshie got out and screamed for help and the guy who's car she had just hit got out and chased John down. Then, a couple of good Samaritans helped to keep John on the sidewalk while he fought to get away. By the time I arrived, the car was still in the middle of the road and several people were in the parking lot nearby. A couple were helping to keep John from escaping but the rest really didn't know what to do. I went around and told everyone of John's condition and thanked them for helping out. The guy said the scratch on his car wasn't enough to even worry about. What a nice guy! I really wish I would have gotten his name. Thankfully, I know his car very well so hopefully I will see him again.
Anyway, we obviously have to worry about safety now so some changes need to be made.
No comments:
Post a Comment