John went through a pretty rough patch last month. But, as is often the case, his best days come after the rough patches. He's doing quite well now. We see very few seizures these days, and his speaking has really improved lately. He uses his AAC device pretty well to request things. And, he'll repeat almost anything you say. The other day we were in our car and Maya left to get something in the house. John said, "Maya, Where go?". Wow, that was pretty cool.
We're down to 300mg Banzel in the AM, and 200mg in the PM, which is about half of what he was on last month. Clearly he's doing better. Now we are wondering if we should just keep it where it is, or try to go lower still.
The big issue we are dealing with now is nightly bedwetting. John has never had a problem with this until about 6 weeks ago. Now it's an issue every single night. For awhile Yoshie was getting up every few hours to take him to the bathroom, and he would still have accidents. He also seems ridiculously thirsty at times. Makes us worry about diabetes. We did go to his pediatrician and they did a urine test that came out normal. But since he went years without any bedwetting, they wanted us to go see a urologist. We're trying to make that appt. now, though it's been pretty tough to get an appointment in a short amount of time.
School has started. John is in 2nd grade now. He seems to like it, and I think he is doing well. We got a note the other day saying he is doing great in speech.
