That last increase in the Keppra did the trick. We haven't seen a seizure since Christmas. He's still on only 2ml twice a day, so we have a lot of room to go up if needed. Hopefully, he won't need it. It's no surprise that with the increase came even more hyperactivity and sleeping troubles. He wakes up every night for 2-3 hours these days. He comes to our bed, and just makes noises and things. It's amazing that he can function so well without ever getting a full nights rest.
We got a referral to see a developmental pediatrician to discuss putting him on some hyperactivity drug. While we're awaiting that, we're also trying the herbs again to see if that might help. He HATES the taste of the herbs, so it's a battle to get him to take it.
We've also decided to slowly get John up to date with his vaccines. We're going to just get one at a time so there is no risk of overloading his system. He only needs 5 more total, so it shouldn't be too bad.
I think John has grown a lot lately. He also lost a couple of teeth (He pulls them out when they get loose). I'll post a picture soon.
He is taking speech therapy 3 times a week now (on top of his normal school day services). It sometimes seems like he makes progress, but he still only has a handful of words. He is pretty good with a picture system, though. And, he loves to sing, though we don't always know what he is singing.
Maya turned 10 a few weeks ago. Check out her blog...
mayahopper.blogspot.com
