John finally got to the dentist for the first time. We found out that OHSU has a dentist for developmentally disabled kids so of course we signed him up.
We had to buckle him down tightly and 3 of us held him down why they tried to take a look. He wasn't very happy about it and let them know it. She was able to do a little cleaning (maybe 1 minutes worth), then they painted some flouride on. We tried really hard to get an x-ray, but were unsuccessful - he was just moving too much. As far as they could tell, everything looked OK. They said we'll do more at our next appt. in 6 months. I hate to tell them that it won't be any easier in 6 months! If anything, he'll just be that much stronger.
Tuesday, February 09, 2010
drug swap
The Klonopin didn't work out well at all. Not only did he become much more irritable, but seizures got much worse as well. His seizures were getting worse and worse every day and it scared us to the point that we took him off of it before things got out of hand. A few days off the drug and he returned to his normal self. Still having too many little seizures and bouncing off the walls, but way better than he was on the Klonopin.
We left him drug free for a couple of weeks again, and recently started him on yet another drug - Zonisamide. So far we haven't seen any bad side effects from this one, though school reported that he had a 50 second seizure yesterday. We're increasing the dose very slowly, so it might be awhile until we know if it has any benefit.
We also took John to the urologist to see if we could find any reason that John sometimes have to go to the bathroom 8-10 times in an hour. Like I said before, he also started wetting the bed every night, after not having this problem for many years. Something definately seems wrong, but so far we don't know what it is. His urine test was normal. The doctor suspects it is just behavioral though it sure doesn't feel like that to us. He has a x-ray and ultrasound on Monday to see if there are any structural problems. I assume that will all look OK and it will just be another thing that nobody can explain.
We left him drug free for a couple of weeks again, and recently started him on yet another drug - Zonisamide. So far we haven't seen any bad side effects from this one, though school reported that he had a 50 second seizure yesterday. We're increasing the dose very slowly, so it might be awhile until we know if it has any benefit.
We also took John to the urologist to see if we could find any reason that John sometimes have to go to the bathroom 8-10 times in an hour. Like I said before, he also started wetting the bed every night, after not having this problem for many years. Something definately seems wrong, but so far we don't know what it is. His urine test was normal. The doctor suspects it is just behavioral though it sure doesn't feel like that to us. He has a x-ray and ultrasound on Monday to see if there are any structural problems. I assume that will all look OK and it will just be another thing that nobody can explain.
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