So, the Zonegran seems to be working. He's still having small seizures, but it seems like his mind has cleared somewhat. He is repeating lots of things now, and has picked up some more phrases ("take a walk"). And, as always, he is very happy. Just recently his seizures have changed to his head jerking to the side. That's different than the normal ones where is head falls straight down. Not sure what that means. And miraculously, all his issues with going to the bathroom every few minutes disappeared when the Zonegran got up to 100mg. I guess it was all somehow related. Now, if I could just take back all those tests we put him through.
I got him set up with a child stoker kit for our tandem and we have taken a few short rides on that. He still tries to jump off before we've come to a complete stop and sometimes rides with no hands. So, we still have some work to do to keep him safe with that.
And, he continues with his normal odd behaviors like eating pencils. This week he took a bite of a light bulb. Somehow we got the glass out of his mouth without any cuts.
He also wrapped up another term of swimming. He still hasn't progressed to any actual swimming or even kicking, but he enjoys it.
And, he continues with his normal odd behaviors like eating pencils. This week he took a bite of a light bulb. Somehow we got the glass out of his mouth without any cuts.
