It's been 5 weeks since John has been off of the Keppra and on 1000mg of Banzel daily. Unfortunately, his seizures have gotten progressively worse. We can't go any higher on the Banzel, and we're not too keen to add the Keppra back in. But, we couldn't sit back and do nothing. So, we actually lowered the Banzel to 800mg/day on Saturday. It could be that he just doesn't do well with the Banzel at that level. He's actually improved a little since Saturday, so maybe that was it. It's just as likely that it was just a fluke. At least he didn't get worse.
Except for the seizures, John has been doing great. He is repeating a lot of words now, and using his communication device more and more.
We were able to get out for a short vacation up to Vancouver BC. He did great in the car, and liked the water parks and swimming pool of course.
2nd grade starts tomorrow!
