I'll try to catch up over the next few days and add some pictures, but the gist of the last month is:
- We increased his Felbatol to 12ml/day.
- He's only had 2 longer seizures in the last month, both of which were different than we've seen in the past, and one of which happened at preschool.
- Daily small seizures continue.
- Behavior has gotten far worse. We don't know the cause of this.
- We built a climbing wall in our living room! (pics coming soon)
- We spent 6 hours in the ER where John ended up getting some stitches in his forehead (not seizure related for once)
- John had blood in his stool, which worried us for awhile. But, the tests came back showing nothing was wrong.
- We had his IEP meeting and we got our tentative placement for the next school year.
- Not John related, but it was confirmed through a stress test that I have some sort of a heart abnormality when my heart is pushed to it's limit... :(
Check back soon!
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