Thursday, June 25, 2009

Disneyland

We had a great trip to Disneyland last week. John did fine on the 1000 mile drive, and was pretty good in the parks for the most part. Of course he had some episodes, but nothing too bad. We were able to get a disability pass, so we could go to the front of the line for most rides. We tried to wait in a couple of the shorter lines but John went crazy and we realized just how essential that disability pass was. Without it, we would not have been able to do a single ride.
See the pictures: http://picasaweb.google.com/dyhopper/Disneyland0902#
John mostly liked the thrilling rides, and he did all of them in both California Adventure and Disneyland, except the 2 that he wasn't tall enough for. Here he is on a less thrilling ride, but loving it just the same:



John continues to do well as we lower his Keppra and raise the Banzel. He is still having the same number of seizures, but his overall demeanor is improving. Tonight we lowered his Keppra again so he is now taking only 1ml twice a day. It makes us a little nervous, as John was having tonic clonic seizures every day until we started the Keppra. But, that was a long time ago so we're hoping we can get rid of the Keppra completely without any problems.