Sunday, March 03, 2013

House

At what point do we quit referring to this as our house and start calling it our gym?


VNS adjustments

We continue to increase John's VNS settings.  He is up to 1.25 output current, with the magnet set to 1.5.  It is on for 30 seconds and off for 1.8 minutes.  He's still having about the same number of seizures, but changes are never immediate with the VNS.  But, one thing we do see with each increase is that he gets super hyper for a while.  It's really incredible to watch him.  He can't stay still for a second.
He has 2 new behaviors since we increased his VNS on Wednesday.  The first is he tries to escape the house constantly.  I installed some more window locks so now he is really locked in, but he has figured out how to undo the door locks so I'll have to add a key to those.
The other new behavior is that he takes all his clothes off constantly.  I mean like 50 times a day.  He can't go 5 minutes without taking his clothes off.  It's very tiring for Yoshie and I as we have to watch him constantly and if we don't our punishment is putting his clothes back on.  It's not too bad until you have to do it several dozen times.  It gets ridiculous.
Yesterday, he combined his 2 new behaviors and was running around out in front of our house completely naked.  I'm kind of surprised we didn't get a visit from the cops.