John has been really struggling with seizures at night. He has seizures every night, usually when coming in and out of deep sleep. But, for awhile there he was having seizures every 40 seconds or so for hours. It was horrible. We traded off staying with him but we were both getting exhausted.
We had his VNS adjusted to a rapid cycling but it didn't help.
In desperation, one night we gave him a pill containing a high-strain of medical marijuana that the dispensary had given me to try out. I simply couldn't remember what he had said about the strength of this we figured it couldn't hurt at this point to give it to him.
Well, it wiped him out for awhile. Until suddenly at 2am he is wide awake and giggling like crazy. Oh man. When he finally went back to sleep he had his normal run of seizures. Then, he slept until 5pm the next day, completely missing school! That was a mistake.
The doctors just don't know what to do and I think they are grasping at straws now, but we were prescribed Strattera, which is an ADHD medicine. The hope was that it would calm him enough before sleep so he wouldn't have so many seizures. But, we just couldn't bring ourselves to giving him another mind-altering drug, especially when one of the common side-effects is increased seizures. So, we got the bottle but have yet to give him any.
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