John has continued to struggle with lots of seizures, especially at night. So, we went back to the doctor to see about a new drug or possibly adjusting his VNS again.
This time, we decided to try a new approach with the VNS. Instead of turning the amperage up again, we decided to try a more rapid cycling. Now, it gives him a 14 second 1.75mA shock every minute or so. John had good success with a rapid cycling many years ago so we are hopeful.
Because his night-time seizures come so often we finally gave in and got a prescription for an oral benzodiazepine that we can give just before bed. These drugs often work and are good for short term usage, but are highly addictive so we don't like to use them. Onward.
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