Thursday, January 17, 2013

Struggling

We went to the surgery follow-up appointment yesterday and the incision is healing nicely so he got the OK to submerge it in water again.  That is good because he likes to play in the bath and didn't understand why he couldn't for the last 2 weeks.  
John continues to do pretty well during the day.  He's had some good therapy sessions and very few daytime seizures.   But, for 2 days in a row now he has had a very bad grand-mal seizure around 5am.  These are the kind where he shakes violently and doesn't breath.  It scares us to death.   And it completely exhausts him.  So, today we had to keep him home from school yet again.

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