Thursday, April 19, 2012

Another doctor

John had 2 more big seizures on the 18th and 19th.   We don't know if this is because of his new med and it's known side-effect of lowering the seizure threshold.  Seems a little suspicious, though.
Today, Yoshie and I met with his new behavioral/developmental pediatrician while John was at school.
This was a good appointment, and this doctor is getting the ball rolling on a lot of things.  It's obvious we've reached a point where we are struggling and need some help.  She is pulling together his other doctors, his school, etc. to get everyone in the loop.
She gave us a dosing schedule to slowly increase the Risperidone, which we will start doing today.   We will increase from .125 twice a day to .25 twice a day.  We will have another meeting with her next week so she can see John in action.

We were able to take a video of our daily struggle to get John on the bus these days:

This goes on for another 5+ minutes inside the bus.  And believe it or not, most days are worse than this.  It's a horrible way to start the day, both for John and for us.  I really wish we knew why he suddenly doesn't want to go to school.  He rode the bus without issue for many years.


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