We had another appointment with the neurologist. John is pretty stable these days so we decided not to change anything for now. We did get the VNS turned up slightly and we got an appt. for another routine EEG and blood draw (to determine the Zonisamide level).
We talked about how John's head drops have changed so that he turns to one side now. We're always hopeful that they will be able to pinpoint where these seizures are coming from. He asked if John sticks out one arm when having a seizure (like shooting a bow and arrow) and he asked if he turns circles or rolls over. We had to answer NO to all of these questions so the Dr. felt like these are still generalized seizures in every sense so likely nothing has changed. However in the days since this appt. I have noticed that he DOES stick one arm out and start to turn around for just a few seconds at the beginning of his longer seizures. Hopefully we will see something when he gets his EEG.
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