John has had a cold for the last week and, as usual, this brings on more seizures. It also really appears that there is a direct correlation between the amount (and quality) of sleep he gets and the number of seizures he has the next day. We consistently see that he has a good day when he sleeps well. It's kind of a catch 22, as his current drug causes sleep problems. I definitely think the drug is helping him, but it is also keeping him from having a good nights sleep, which is likely hurting him. So, we carry on with our adjustments, hoping we can find the sweet spot again where he can go seizure free.
John didn't do so well seizure-wise with all the extra activity that Christmas brings. As you'd expect, he got really excited and for him that means increased seizures. He's done much better in the couple of days after Christmas. He still doesn't understand presents or anything. Even new toys don't interest him at first, though he does seem to slowly take interest in his own time.
We tried to get a picture with Santa, but John won't ever stay still long enough to snap a picture so we ended up with a nice picture of Maya and Santa, with John trying to squirm away.
Yoshie's mother is coming to stay with us for a week beginning on Dec. 31. It will be interesting to see how John reacts to this. He seems to enjoy having others around so I think it will be good.
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