Wednesday, November 23, 2005

Up and Down

John continues to do quite well overall, but still seems to have good and bad days for no apparent reason. He's had a couple of days now where we didn't see any seizures at all, and other days where he's had a couple of stronger myoclonic head drops (one that actually bruised Yoshies face). You can tell that something still isn't quite right in his mind, though, as he can quickly go from being happy and playing to yelling or acting fearful of something for a short time. I think he's probably having subclinical seizures, though it could also be a side-effect of the Lamictal. We won't know for sure until we get another EEG. We'll probably try to schedule that for early next year.
We still haven't succeeded in getting John any speech therapy. We had both a private and County therapist scheduled to see him, but the private therapist is just too busy I guess, and the govt. supplied therapist is sick and won't be back until January. So, we keep plugging along trying to do the best we can. I don't really think there is any magic to speech therapy, and what we are doing is probably the same thing a therapist would do. Still, it would be nice to actually have a therapist confirm that.
This Thanksgiving is certainly better than last year. This year, he can join us at the table, which is great. Last year, he couldn't eat at the table because he was having such frequent seizures that he'd get hurt, and he was on the keto diet.

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