A lot has happened since I last updated, though there has been no change in his seizures.
We had a meeting with his pre-school teachers and nurses to discuss our concerns about his pre-school environment. It went very well, and they agreed with everything we said. That was a big relief. So, for the next 3 months, we will be getting home therapy sessions in speech and general therapy. We'll also have one at-home session to go over occupational therapy issues and then the occupational therapist will be available for consultation on an ongoing basis. We'd like to get John back in preschool eventually, but not until we feel it is worthwhile. In the meantime, we're happy with this situation.
We increased John's lamictal dose to 112.5mg/day, starting on Monday. We really don't see any difference, good or bad. John does seem especially happy and attentive these days, and that could well be due to the lamictal. I guess we'll never know unless we get rid of it. Unless we see some negative effects, we'll continue to increase this drug until we get to the upper end of his therapeutic range (200mg/day). We still have a feeling this one might help him at a higher dose.
John enjoyed Halloween. He dressed as a furry green dragon, and went trick-or-treating at a couple of houses. At the first house we went to, he ran straight through the front door all the way to the kitchen area where some ladies were cleaning up. I had to run in after him. I think the house owners were amused. We had a party at Eric & Amy's house, and mostly John just enjoyed having all of the people around. Even though he doesn't talk, he definately loves the parties.
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