John didn't improve at all with the Lamictal dose at 87.5. In fact, his daily seizure count is slowly increasing. I also think that some of his seizures are getting a bit stronger. Still, they aren't bad, but I don't want things to spiral out of control again. We increased his Lamictal to 100mg on Oct. 10. So far this increased dose isn't helping either. On Saturday, he only had 4 seizures and we thought things were getting better. Sunday was more of a normal day with 10-12 seizures. Yesterday was worse again with 15+ seizures. We also saw the seizures cluster again for the first time in months. It's hard to say if the Lamictal is hurting him, or if things just change randomly. He seems a bit better again today, so we'll wait this out. I don't think we'll go any higher on the Lamictal unless we see some improvement over the next couple of days.
We did see a new speech therapist who was optimistic about John's chances to learn to speak, which was nice to hear. We're probably going to attend a "workshop" with her, and then take on the therapy ourselves. She said we had to commit to 20+ hours/week of therapy, and she left it up to us if we wanted to do the therapy ourselves or hire a therapist. Of course we are willing to do it ourselves.
No comments:
Post a Comment