John seemed to do OK with the first Lamictal reduction, so we took out another quarter pill last Friday (8/19). Saturday night we thought we might have seen a small seizure. He confirmed it on Sunday with 10 or so small seizures. These seizures are nothing like before, and consist of just a very slight head nod followed by a few seconds of confusion. These could be withdrawal seizures, but it was hard to see John seize at all again after 2 months of seizure freedom. So, on Monday morning we added the 1/4 pill back in. Unfortunately the seizures have continued throughout the week, though I think they may be getting less frequent again. If he's still having seizures early next week, we'll raise his Lamictal again to the point where it was when he had the good seizure-free stretch (75mg). If that doesn't work, I guess maybe we'll try to get the VNS adjusted. It's disappointing for sure, but if you look at the big picture, things are still very good.
I took John to speech therapy last week, and his therapist decided that John was too delayed for speech therapy. She thought he needed more time. She said the best thing for him would be just lots of group play time, in a structured setting. He needs to first understand some of what we are saying to him before he can really learn to talk. So, we are dropping the speech therapy for now, and we'll try occupational therapy for awhile. Plus, he will start back up with his preschool soon.
No comments:
Post a Comment