Well, we're all ready for tomorrow's VNS surgery. We're scared of the surgery, but excited to have a chance to help his seizures. His temperature was totally normal today, which is a big relief. He was at 100.1 yesterday morning, though still not acting sick at all. The surgery is scheduled for 9am, and we are checking in at 7am. Hopefully, it will be all done by noon. Yoshie had to cook all of his keto meals for the next couple of days. The plan is to have her stay overnight tomorrow, and I'll come back home to stay with Maya. We expect to be able to come home on Tuesday.
Seizure-wise, he had another tough week. He probably averaged around 30-32 cluster/day this week. Today was the worst at 37 clusters (70 seizures).
I finally picked up his Lamictal prescription (we've been using the samples until now). I was shocked to see the price of this drug was $804 month, even at this low dose. Thankfully, I have good insurance and it only cost us $20. I really feel sorry for all those people without any insurance.
