John's all time record for seizure clusters was set just a few days ago at 26. Yesterday, he had 31 clusters. That is basically a cluster of seizures every 20-25 minutes all day long. He also ended up with 96 total seizures, which is pretty close to his worst ever. We're hoping that these are still a result of the Felbatol, and that he'll get better as we come off of this drug.
Interestingly, his blood glucose was 60 again, and his ketones were 5.6. We would never expect numbers like that on a 3:1 ratio. I have no idea what is going on. It MUST be some reaction to the drug.
We're taking out half of his dose today, so hopefully we'll see some improvement.
John also had his hearing checked today. That is standard procedure for speech delayed kids. His hearing was fine, as we already knew.
