We finally got John's helmet on Thursday. I can't believe it took that long. We were told 2-3 days, and it ended up taking over a month. We didn't really care, as we were pretty sure John wouldn't wear it. And, sure enough he didn't want to have anything to do with that helmet at first. I don't know what Yoshie did while I was at work on Friday, but when I came home, John was happily wearing his helmet! And, he's had no problem wearing it most of the day today. He's enjoying his new freedom. We've had to hold him by a leash for months. We still have to keep a close eye on him, but we feel safe as long as we're in the same room. I saw at least 2 seizures today were he landed directly on the top of his head and didn't seem to get phased at all, so I think the helmet is doing it's job.
It also turns out that John was running a bit of a fever the last couple of days. He was fine in the morning, but by dinner time his temperature climbed to 100F both Friday and Saturday. I think he felt a little better after a little Tylenol. Hopefully he doesn't have this nasty cold that Yoshie has.
We saw the chiropractic neurologist on Thursday, and he did another neck adjustment. John continues to enjoy this, but it hasn't had any effect on his seizures. We saw the naturopath again, and he wanted us to increase John's P-5-P, change his l-tyrosine to acetyl tyrosine, and add one more amino acid. He also ordered an organic acid test that we can do at home.
Finally, due to an insurance change at my work that takes effect Apr. 1, we had to reschedule John's VNS surgery to Mar. 28. We didn't want to do this, but it just turned out that way. In some ways, we're happy with this, as I think we'll know if the Felbatol is working by then. If not, there is no reason to delay the surgery. Plus, 4/4 is sort of a bad luck day for Japanese, as the word for 4 (shi) also means death.
