John has now been seizure free for over 5 weeks! We have seen some odd staring that worried us a little, but nothing that I would classify as a seizure. So, it's been a very nice break for us. Still, he is a handfull. He's incredibly active. It's hard to explain. I followed him around for just a few minutes with a camera and this is what I came up with. Keep in mind that he goes like this non-stop all waking hours:
In case you can't tell, he's super happy.
John's twice a week therapy started last week. So far, so good. In our efforts to engage him more, we are spending more time on the floor playing with him, so of course he likes it.
We also went back to the developmental ped. He had videotaped John at our last appointment, and he had met with other experts to discuss John. He also talked to our neurologist. He offered to prescribe Risperidone, and thought it might help John to concentrate more. We're not interested in that right now, as one of the side-effects is a reduced seizure threshold. We're not touching anything right now. And, of course we're still holding out hope that he can remain seizure-free and that in itself will eventually help him.
No comments:
Post a Comment