Thursday, July 28, 2005

Still seizure free

The title says it all. It's been 5 1/2 weeks since we last saw a seizure.
He's just having a good time being able to be a kid again.
He is still having some issues with learning. I don't think he's fully capable of learning new words yet. It might just take time, or it might just be the way things are. We have no idea what underlying problem caused the seizures, and we don't know if all of the seizures have causes some brain damage. It doesn't really matter. He's seizure free, and we couldn't be happier.

The neurologist got back to me regarding the VNS settings. Thankfully, Cyberonics said that his settings were perfectly safe. They said that their advice would be not to touch anything. Seizure freedom is very hard to attain, and once lost there is no guarantee that you can get it back. We agree completely. So, if he stays seizure free, he doesn't need to go back to the neurologist until 2006.

His early intervention preschool has been a bit of a disappointment. It's just like any other preschool I guess, in that they don't teach much of anything. Really, it seems to be just a place to drop the kids off so that the parents can get a rest. Some of the kids have behavior issues too, and it scares John. I think what John needs is intensive speech therapy. So, I may have to try to set up a meeting to discuss our concerns. We will also be getting private speech therapy in addition to whatever they provide. The other problem with this preschool is that it is from 1:30 to 3:30 in the afternoon. This is prime nap time for John. With his Lamictal already causing sleep problems, we can't afford to interrupt his naps. So, he's already missed some classes, or part of classes. Maybe we can get him put in to an earlier class.

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