Saturday, May 07, 2005

Worse again

At some point, things have to start getting better. It certainly hasn't happened yet. This week was another new record for the number of seizure clusters (285), despite being on more Lamictal. The Lamictal could well be making things worse but, like I said before, we don't have too many choices left so we need to at least get this one up to a high therapeutic dose before we give up on it. Of course, if this downward trend continues we will have to rethink this stategy.
There is some evidence that the VNS doesn't start working for people until after a couple of months. Hopefully, that is the case with John.
John hit his face a couple of time this week. He has new bruises on his forehead and his nose. And, he reopened the cut on his eyelid earlier in the week, as well as bruising it again.
We tried to go to a restaurant today for the first time in 10 months. Of course John made quite a scene by slamming his head into the dishes and spilling food everywhere. It was miserable and we had to leave early. I don't think Yoshie had a chance to eat anything.
We'll get the VNS turned up again on Monday. We're certainly not expecting that to help things at all, at least not immediately.
All that being said, things have been worse in the past. He's definately having more seizures now, but his mind seems clear and he's happy. It's better now than the times when he was just dull and never smiled. I believe that today ends his worst week that he'll ever have, seizure wise. I really think he is about to turn the corner and things will start getting better again.

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