John Kenta

John is really having a hard time at night now.  Almost every day he will have a big seizure about 1 hour after going to bed.  He wakes up r...

While we've never had long seizure-free periods, we had been doing pretty well lately, averaging about one large seizure per week.   For...

While we avoided damaging the condo while on vacation, it didn't take long after we returned to cause some real damage: Who kn...

We had a nice weekend in Sunriver.  We got in some nice boating, hiking, and swimming.  And, we avoided damaging the condo.  Yay! ...

We got an aluminum teapot so that John couldn't break it. He still found a way:

We are getting the window replaced with some shatter-proof glass, but it is going to take awhile.  So, I had to board it up:  

We knew it would happen someday.  John loves to lay backwards on the couch and kick the window. Thankfully it was only one pane of a...

We'll see how these hold up, but so far they seem like the best invention ever: The drawers and cabinets stay locked until you s...

John eats an amazing amount of food, but he is also pretty wasteful. This is a normal result after eating popcorn: and here is th...

Well, it was a long time coming, but we finally were able to get John on medical marijuana.  It's kind of ironic that it happened the sa...

Maybe the next big thing?

Of course, there is no child lock made that can keep John out.  So, long ago we resorted to tying up the cupboard to keep him out.  It's...

It's been a long time since I've seen a big grand mal seizure.   We had a few last week after he drank the diastat, but those were o...

Oh man.  Yet another new thing to worry about.   John has taken a liking to paper money.   I mean, EATING paper money.  I guess he likes the...

We had a little bit of a scare last week when John decided to DRINK his emergency medicine (Diastat otherwise known as valium) that is norma...

It's hard to see in the picture, but John's new fascination is taking all of our shoes and putting them behind the piano.

The destruction continues.  In the last couple of days he broke the glass light in our bedroom, pulled out the light in our bedroom that was...

So one of John's new hobbies is ripping up papers.  This was just a newspaper, but he has since moved on to magazines and books.

John has always been an escape artist.  But, lately his desire to escape our house has become alarming.  We already have keypad locks on all...

Well, I knew it was too good to last.  We had a couple of months of nice runs where I pushed John in his push chair and Yoshie rode her bik...

He can get on the roof in about 20 seconds now via the tree in our front yard.  And, he will if you take your attention off of him at all. ...

For some unknown reason, John had a NEED to move all of our shoes to this one location.  There was no stopping him. Autism is so weird...

We bought the mats to keep him safer, but of course he figured out a way to have some fun with them:

This is why we keep the cupboard locked:

John was supposed to be in bed (in his pajamas).  This is where we found him:

Window sill:

Another sun visor (3rd one for those that are counting): Another umbrella: And, this is a new one.  He discovered the molding ca...

John is back to climbing the trees.  This is the one he uses to try to get on the roof. As you can guess, we have to watch him very c...

I hope this current phase of tipping over furniture when he gets angry passes quickly.

We took a short 1-night trip to the beach.  We stayed at a place he is familiar with because he loves their pool.  Unfortunately the pool pu...

Yoshie and I can't remember ever seeing John cry.  I think it's been years.  But yesterday evening, he had these wild mood swings wh...

I pushed John in the giant stroller on my run today.  It actually went quite well!  We picked a flat bike path.  We ran for an hour and I di...

And this is what happens when John is left alone in the car for a few minutes: $90!   I only know because this is the 2nd time this has...

This is what happens when John is left alone for 3 minutes.

Happy Birthday John!   We had a nice little party with Christi, Jack, and Grandma. John got a new "push chair".  It...

We had a nice pancake breakfast at John's school this morning where he got recognition for finishing 5th grade. Then, he proceede...

John loves any foods/drink with a strong flavor.  He loves to eat salsa by the bowlful, and liked coffee for his entire life.  He will also ...

We are continuing to get John vaccinated, one shot at a time.  It obviously takes longer, but if you've had the chance to see John after...

I had to put a window lock on John's bedroom window after we found him running around outside at 10pm when we thought he was asleep!

At what point do we quit referring to this as our house and start calling it our gym?

We continue to increase John's VNS settings.  He is up to 1.25 output current, with the magnet set to 1.5.  It is on for 30 seconds and ...

We're still hoping the VNS will help with these night seizures, and we have 2 more appointments to adjust his VNS settings.   But, in th...

Yoshie took some video of one of John's night time seizures this morning.  These are the typical ones that he has 3-4 times a night now:...

The daytime seizures have mostly stayed away which has been really nice.  Unfortunately the bigger night time seizures have continued so we ...

We went to the surgery follow-up appointment yesterday and the incision is healing nicely so he got the OK to submerge it in water again.  T...

John had his VNS replaced again on Jan. 3.   Over the last several months John's seizures had gotten progressively worse so we made an a...

Today, John's behavior therapist came over.  We haven't seen her for awhile, so we had a lot to share.  She gave us some techniques ...

We went back to the developmental pediatrician today, this time with John.  She wanted to do an exam, but of course he wouldn't allow th...

John's seizures have gotten somewhat worse lately.  Today he had a big seizure in the morning and he had to sleep it off all morning so ...

Just another day dealing with the "new" John.   We took him to a park to play for 30 minutes while we were waiting to pick up Maya...

Well, John did wet the bed today.  But, this is the first time in over a week!  So, simply moving his seizure med from night to morning made...

John had 2 more big seizures on the 18th and 19th.   We don't know if this is because of his new med and it's known side-effect of l...

Maya and I left for a hike today.  John ended up having a big seizure in the morning, with no breathing and just his right arm shaking viole...

Today started with John's appointment with his primary care physician.  She came in early just to see John which was nice.  John was cra...

Today, we had an appt. with the sleep study center.  John's neurologist referred us here due to John's issues with bed-wetting and w...

I obviously haven't been very good about keeping the blog updated.  But, things are changing again so I will make an effort to keep this...

John went to a special needs camp all last week. We were pretty nervous about sending him, but he seemed to really like it. That is, unti...

The trip to Tokyo went well. I think John had a great time. The flights were tough, but only because he was happy and making a lot of no...