John is really having a hard time at night now. Almost every day he will have a big seizure about 1 hour after going to bed. He wakes up right before the seizure and is scared. He made it down the hall one day before being taken down.
Last night the seizures continued all night. They were small, but Yoshie estimated that she had to use the magnet 20 times to try to stop seizures.
We are at a point where we have to do something. We have an appointment to get his VNS adjusted in a couple of weeks, and we're still hoping to find the right strain of marijuana that could help him. In the meantime, we'll probably have to raise one of the other meds he is on. We always hate to do that but there comes a time when we really don't have a choice.
Medical Marijuana is a platform for patients and a very good medicine for some treatments. But it should be used very carefully and with appropriate doze.
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