John Kenta

John's seizures are mostly at night these days, but he had one in the evening tonight.  Yoshie was able to get a good part of it on vide...

We haven't changed anything, but something has happened to John.  He's completely out of control now.  School couldn't handle hi...

We had a follow up appointment with John's neurologist today.  John was simply crazy.  Unfortunately there is a Taco Bell near the docto...

Here are the types of seizures that John is suffering from these days.   These can happen once every 2 days, up to 4-5 times in a single day...

John started the 7th grade today.  He's in the same ISC class as last year with pretty much the same classmates.  We like the teachers t...

Maya has been in Japan for awhile and Yoshie went for the past few weeks.  So, it's been just John and I for a bit. John went to Imagin...

In addition to the last VNS adjustment (to rapid cycling) we also increased his Zonisamide dosage.  Neither of these things helped at all so...

John has been really struggling with seizures at night.  He has seizures every night, usually when coming in and out of deep sleep.  But, fo...

We took a family trip up north.  We are still hesitant to take John on an airplane but he generally does great in the car so we decided to ...

Unfortunately, the day started just after we left our house with one of the biggest seizures we've ever seen.  It lasted for minutes an...

For the first time EVER, we were able to go take a bike ride with the entire family. We loaded up the car and headed to the Banks-Vernonia ...

John celebrated his 12th birthday on Friday.   It also happened to be Friday the 13th and a full moon.   The morning was rough with 3 grand-...

After work today John and I headed out on our first "real" bike ride.  It was only going to be about 5 miles round trip (to my mom...

We ordered the tandem several weeks ago and I got the call that the bike was ready! They wanted John there at the shop when we picked it up...

Those that know John know that he often decides to pee in the yard or even in a store parking lot.   But, the other day he decided to sit up...

John has continued to struggle with lots of seizures, especially at night.   So, we went back to the doctor to see about a new drug or possi...

John has been almost uncontrollable lately.  He's just full of energy.  He also has decided that staying up late is his thing.   Our hou...

Last December, John got selected to be a "Sparrow Child" by Sparrow Clubs USA.   This is an organization that matches up kids in n...

The kids from Battle Ground High School had another fundraiser for the Sparrow Club (and John) at the Burgerville in Battle Ground.  The Mr...

We had John's yearly IEP meeting last week.  This is where we meet with all of his teachers and come up with his goals for the new year....

We got a message from the teacher today saying that John had a good day, but tried to break the projector and purposely peed on the classroo...

Last night, the kids from Battle Ground HS had their first fundraiser for their sparrow (which happens to be John!).   It was held at a n...

I've been wanted to post about this for awhile, but I waited to make sure it was actually going to happen first. John got selected by  ...

It's just a typical bloody nose, but when Yoshie first saw him I think she got a little freaked out:

Since John started at his new school in September he has not had a single grand-mal seizure while in class, as most of his big seizures have...

We didn't take John out to eat for many years.  It was mainly because of his never-ending seizures, but also because of his behavior.  O...

Well, that was a tough couple of weeks.  Ever since John's Thanksgiving adventure night seizures have been relentless.  Yoshie and I tra...

John gets in to these moods where he likes to throw things.  Sometimes it is when he is angry or frustrated, but most of the time it seems c...

Yoshie told me yesterday that John had about 40 seizures that she was aware of on Monday night.   Last night, I put John to sleep and stayed...

Well, this was an eventful one. Maya, John, and I started the day with the local 2 mile turkey trot.  John ran for the first quarter mile, ...

It's really hard to get video of a seizure.  They come on so randomly and obviously grabbing a camera is not the first thing on your min...

I've mentioned it before, but we've started John on cannabis.  It is legal in Oregon, and we are properly licensed to both administe...

John has been suffering a lot of night seizures, but hasn't had any daytime seizures for quite some time.  Of course that all changed on...

John has really been struggling with big nighttime seizures lately so we decided to get his VNS adjusted again.  It has been at a pretty low...

Last week it was all about chair arrangement.  This week he has moved on to chair destruction: We really don't have much fur...

John's new "thing" is taking all of our dining room chairs and arranging them in some unique way.  I have no idea what he is t...