John Kenta

I finally got up the nerve to try riding with John. Of course he loves it, and wants to go every day. I still worry about him having a sei...

I'm a little late posting about John's school, but here he is on his first day of first grade. This was also Maya's first day of...

On Aug. 27, we gave John his last dose of Felbatol. So, it's been almost a month now, and we didn't really see much change. He sti...

John's myoclonic seizures have been getting slightly worse all summer long. He's still doing great, but we felt it was time to sho...

Here's some pictures from our road trips last week: Trillium Lake Trillium Lake John has been a good car traveler lately. This is actual...

I haven't posted in awhile. As usual, that means things are pretty much unchanged from my last post. John continues to have several c...

It's been a while since I've posted, and quite a bit has happened in the last month. We have continued to lower the Felbatol level. ...

At our last doctor visit, we had a chance to see the EEG and how it correlated to John's seizures. John is definately still having seizu...

On Saturday, our friend Rick offered to take us to the Portland Rock Gym. He knows how to do the belaying, so John and Michael (his son) go...

Here's a picture of John with his new VNS. You can see that it is significantly smaller than the previous one. I think the stitches i...

Everything went as planned. We are back home and John is doing fine. We arrived at the hospital at 7:30 Monday morning. No mix-ups this time...

We went in for John's EEG last week, but there was some mix-up and we were finally sent home and forced to reschedule. We got reschedule...

Not a lot has changed seizure-wise since my last post. John continues to have at least 1 cluster of seizures every day. Each cluster has bet...

Yoshie and Maya are in Japan this week, so John and I have been having fun playing with our Christmas toys. We even got a little snow on Chr...

John has started having seizures pretty much every day now. They are still really small, but come in clusters again. We can only assume that...

Our neurologist got back to me on a Friday evening, just an hour after I e-mailed him. Wow. He said the high felbatol level was not worrisom...

His EEG showed some interesting things. It's still very abnormal, which is no surprise. But, it looks like he has more discharges while ...

I just got John's blood test results: White cell count, hemoglobin, hematocrit, MCV, RDW, Platelet Count, Iron levels, and Lead levels w...

John had another EEG this morning. As always, it was pretty traumatic for him to have to lay there while the leads were glued on. It gets ha...

We went to Eric and Amy's for Halloween again this year. Maya had a good time trick-or-treating (after recovering from her fall). But Jo...

John had a neurologist appt. on Thursday. We had his VNS checked and it is almost dead. He said that it likely isn't even giving the ful...

I haven't updated in awhile. This time no news is good news. It's now been over 4 months since we've seen a seizure. It's ki...

John had his first day of kindergarten yesterday. He was crying when we left in the morning... , but was smiling when he got off the bus in...

It's hard to believe, but we haven't seen a seizure for 100 days! And, John starts kindergarten on Tuesday. He'll be in class fr...

The big news is that John has now gone 75 days without a noticeable seizure. Woohoo ! Because of his success, we haven't changed anythin...

John has now been seizure free for over 5 weeks! We have seen some odd staring that worried us a little, but nothing that I would classify a...

John turned 5 years old on Wednesday. This birthday was especially good, as it was his first seizure-free birthday since he was 1. I've ...

John's seizures continued to get worse, to the point he was having a 45-60 second seizure almost every day, and even started having mult...

Since John turns 5 next month, he is eligible for kindergarten starting this September. So, we had his IEP meeting last week. The purpose...

John has taken a turn for the worse this week, at least as far as seizures are concerned. He had a 60 second seizure 3 days in a row this w...

Last week, we noticed on several occasions that John had blood in his stool. He had not been constipated or anything, so it seemed odd to ...

Even though we know we are still destined to try Keppra , we are making sure that we given mono therapy every possible chance first. So, w...

I haven't posted in a long time, but not because nothing has been going on! I'll try to catch up over the next few days and add some...

We had John's Felbatol level checked last week. The normal range is 30-60, and John was at 46. Hmmm. I don't understand how he ca...

Over the past month, we've seen things pretty much remain the same. His big seizures (90 seconds) come every 2-7 days. His pattern of ha...

John's cycle of having a bad day followed by a handful of good days has continued. All last week John had a new game where I would hold ...

Johns situation continues to change, mostly for the better. Because of this, we haven't made any drug changes yet. It just seems like we...

We got a little snow around here last week, and the appointment that we had waited months for was canceled. Thankfully, we were able to re...

The never-ending roller-coaster ride continues on. John had a couple of good days. He went almost 2 full days without a big seizure (thoug...

John had a seizure of over 1 minute on Friday, along with his normal couple dozen of small seizures. That was the longest we'd seen in ...

John is now on his maximum dose of Felbatol, and he's still having many smaller seizures and some bigger ones. He was having a large ...

John continues to have longer seizures on most days, but we haven't seen any over 10-15 seconds since last week. He had a great Christma...

The battery was fine. So, the increase in seizure activity means something else is going on. We asked the doctor if maybe John just needed...

Well, John has continued to have lots of little seizures, and at least 1 larger seizure in the morning. This morning he had a 15-20 second ...

John's seizures have continued to get worse. Yesterday he had two longer seizures in the morning that scared me enough that I took the ...

John seems to be understanding and vocalizing a little better this week, but the seizures are getting worse again. Both the number and stren...