doctors comments

Our neurologist got back to me on a Friday evening, just an hour after I e-mailed him. Wow.

He said the high felbatol level was not worrisome, as it was taken just a couple of hours after John was given a dose. The reference range refers to the level first thing in the morning. Still, he said to go ahead with our reduction of the Felbatol. So, we took out 1 ml in the morning, starting yesterday. We're crossing our fingers that he remains seizure free. I think he will.

As for the EEG, he said it was a big improvement over the last one. In his words: "I'm pleased to see that it's tremendously improved from John's prior studies, including the video-eeg from 2004. His waking background looks dramatically better than before."
Wow, that is great news! It's the first time in 3 years that we've heard that things are better than before. Let's hope he's turned the corner and will continue to improve.

As for the focal point, he said that the focal point is for discharges and may or may not also be a focal point for actual seizures. If the seizures return, we'll get an extended video EEG to see if the seizures also originate from this focal point. Still, it's definately different than his previous EEG's, where the seizures and discharges came from everywhere. He also said that he took a look at John's most recent MRI and there was nothing abnormal in that area of the brain.