Well, that was a tough couple of weeks. Ever since John's Thanksgiving adventure night seizures have been relentless. Yoshie and I traded off sleeping with him to try to keep him safe. He had several nights with 100+ seizures.
Last week we went to the neurologist to make sure that his VNS was working properly. It was. We got it turned up a notch and also got a prescription for a bit more Zonisamide to be given before bed. Nothing changed for the first few days after this, but on the 3rd night Yoshie said that he was much better: "Only 40 seizures".
He only had a half dozen or so the following night. Then, maybe just 1 small one the last couple of nights. Yay! We'll never know if the VNS or the drug made the difference, or if it would have just stopped anyway.
With his seizures all but stopped, his activity level went through the roof. We got a couple of calls from school and he had to be "restrained" at least once. He has big mood swings and will fight and pinch when he doesn't get his way. But, this also seems to be lessening with time. Things are almost back to normal, or at least as normal as they ever are.
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