Since John continued to have the small seizures, we slowly ramped up the Zonisamide to 150mg a day. Soon after that, he started having 30-45 second tonic-clonic seizures again. We never know if it just coincidence but the correlation was strong enough this time that we lowered it back down to 125mg. Within 2 weeks, the tonic-clonic seizures were gone. So, we're pretty sure that the higher dose was causing problems. It could just as easily be something like he was fighting off some sickness. This has been a good drug otherwise, so we're content to keep him at 125mg for now. He still has the daily small "head-turning" seizures, but I think we can all live with those.
We've noticed that his "talking" has gotten a bit clearer lately. He likes to sing "Happy Birthday" and most of it is pretty clear now. And, he can count to 6 now. We'll see how long that lasts. School reports continually say that he is happy and excited.
He did get approved for extended year school this summer. That is definately a good thing, considering his tendancy to forget things that he has learned.
John,
ReplyDeleteMy name is Geoff, just came across your posting on my blog noahsnoggin about our son. I would really like to find a time to hook up and chat a bit.
Hit me up when you can at huntgt@gmail.com .
Look forward to speaking with you soon.
Best,
Geoff