John Kenta

John has always been an escape artist.  But, lately his desire to escape our house has become alarming.  We already have keypad locks on all...

Well, I knew it was too good to last.  We had a couple of months of nice runs where I pushed John in his push chair and Yoshie rode her bik...

He can get on the roof in about 20 seconds now via the tree in our front yard.  And, he will if you take your attention off of him at all. ...

For some unknown reason, John had a NEED to move all of our shoes to this one location.  There was no stopping him. Autism is so weird...

We bought the mats to keep him safer, but of course he figured out a way to have some fun with them:

This is why we keep the cupboard locked:

John was supposed to be in bed (in his pajamas).  This is where we found him:

Window sill:

Another sun visor (3rd one for those that are counting): Another umbrella: And, this is a new one.  He discovered the molding ca...

John is back to climbing the trees.  This is the one he uses to try to get on the roof. As you can guess, we have to watch him very c...

I hope this current phase of tipping over furniture when he gets angry passes quickly.

We took a short 1-night trip to the beach.  We stayed at a place he is familiar with because he loves their pool.  Unfortunately the pool pu...

Yoshie and I can't remember ever seeing John cry.  I think it's been years.  But yesterday evening, he had these wild mood swings wh...

I pushed John in the giant stroller on my run today.  It actually went quite well!  We picked a flat bike path.  We ran for an hour and I di...

And this is what happens when John is left alone in the car for a few minutes: $90!   I only know because this is the 2nd time this has...

This is what happens when John is left alone for 3 minutes.

Happy Birthday John!   We had a nice little party with Christi, Jack, and Grandma. John got a new "push chair".  It...

We had a nice pancake breakfast at John's school this morning where he got recognition for finishing 5th grade. Then, he proceede...

John loves any foods/drink with a strong flavor.  He loves to eat salsa by the bowlful, and liked coffee for his entire life.  He will also ...

We are continuing to get John vaccinated, one shot at a time.  It obviously takes longer, but if you've had the chance to see John after...

I had to put a window lock on John's bedroom window after we found him running around outside at 10pm when we thought he was asleep!

At what point do we quit referring to this as our house and start calling it our gym?

We continue to increase John's VNS settings.  He is up to 1.25 output current, with the magnet set to 1.5.  It is on for 30 seconds and ...

We're still hoping the VNS will help with these night seizures, and we have 2 more appointments to adjust his VNS settings.   But, in th...

Yoshie took some video of one of John's night time seizures this morning.  These are the typical ones that he has 3-4 times a night now:...

The daytime seizures have mostly stayed away which has been really nice.  Unfortunately the bigger night time seizures have continued so we ...

We went to the surgery follow-up appointment yesterday and the incision is healing nicely so he got the OK to submerge it in water again.  T...

John had his VNS replaced again on Jan. 3.   Over the last several months John's seizures had gotten progressively worse so we made an a...

Today, John's behavior therapist came over.  We haven't seen her for awhile, so we had a lot to share.  She gave us some techniques ...

We went back to the developmental pediatrician today, this time with John.  She wanted to do an exam, but of course he wouldn't allow th...

John's seizures have gotten somewhat worse lately.  Today he had a big seizure in the morning and he had to sleep it off all morning so ...

Just another day dealing with the "new" John.   We took him to a park to play for 30 minutes while we were waiting to pick up Maya...

Well, John did wet the bed today.  But, this is the first time in over a week!  So, simply moving his seizure med from night to morning made...

John had 2 more big seizures on the 18th and 19th.   We don't know if this is because of his new med and it's known side-effect of l...

Maya and I left for a hike today.  John ended up having a big seizure in the morning, with no breathing and just his right arm shaking viole...

Today started with John's appointment with his primary care physician.  She came in early just to see John which was nice.  John was cra...

Today, we had an appt. with the sleep study center.  John's neurologist referred us here due to John's issues with bed-wetting and w...

I obviously haven't been very good about keeping the blog updated.  But, things are changing again so I will make an effort to keep this...

John went to a special needs camp all last week. We were pretty nervous about sending him, but he seemed to really like it. That is, unti...

The trip to Tokyo went well. I think John had a great time. The flights were tough, but only because he was happy and making a lot of no...

John turned 9 earlier this week. We just had a family party, but he had a great time opening presents, eating cake, and jumping in the infla...

The increase in the zonisamide didn't help at all. In fact, his seizures have gotten somewhat worse lately. He's having a lot of s...

Who would have expected that getting a tooth pulled would cost over $8500? That is just ridiculous. Our copay is about $1700. Kind of st...

John had an extra baby tooth right in the front his mouth. We have known about it for a long time, and desperately tried to get someone to ...

Now that it is almost winter, I thought I'd put up some pics from the summer. John riding his scooter. Don't know how he got out w...

John started 3rd grade yesterday. He seemed happy to go back. We had a good summer. I'll post some pictures soon of some of our adven...

Some parents organized a special showing of Toy Story 3 for special needs kids at our local theater. John has never been to a movie, so I ...

I thought I would post some pictures from our father's day get together at Lucky Lab. John and Grandpa: John, Dad, and Maya:

We took John in for another routine EEG. The last time we did this, he screamed for a long time and we had to forcefully hold him down so ...

John celebrated his 8th birthday on Sunday. We had the family over for a party and he had a great time. He now understands that the prese...