John Kenta

John has been on Felbatol for 1 week now. Based on seizure count alone, he has done progressively worse this week, culminating with 76 seiz...

John's cold is better, and we're still not seeing any improved seizure control, so we made the gut-wrenching decision to start him o...

Since we really haven't seen any improvement on the diet at the 4:1 ratio, we made the tough decision on Sunday to start weaning the die...

We are now 2 weeks in to a 4:1 ratio. We haven't seen any change with the seizures, but we also haven't seen his blood ketone level ...

Well, all of the entries prior to this one were written after the fact. From here on out, I'll try to post on a regular basis so the inf...

We continued to wean the Topamax in January. On January 25, John was officially drug-free!!! He did have a bad stretch of seizures in the ...

We continued to wean the tranxene in December. We saw a slight increase in seizures with each step, but nothing dramatic. And, after a few...

The main theme of November was John's ongoing constipation issues, and very huge number of daily seizures. We also spent the entire mon...

October started rather poorly, with John losing the good days of 20ish seizures. We held off making any changes to see if he would get back ...

John started September having 35-45 seizures per day. He was on 60mg of Topamax, 7.5mg Tranxene, 200mg B6, 175mg depakote, and a 2:7 ratio ...

We really believed that John was a perfect fit for the ketogenic diet. I think we both thought he would go seizure free in the first couple ...

July started very terribly. He had 77 seizures on July 1, which was his worst ever by far. Then, he had a fever of 102 on the 2nd. I didn...

We started keeping very accurate records of every seizure that we saw. This required us to watch John all of his waking hours. Things varied...

We came back home on Wed., Jun 9. We were giving him 300mg of Valproic Acid/day, as instructed. John was pretty unstable on his feet, and qu...

I turns out that a "24 hour" EEG is not necessarily 24 hours at all. They just want to make sure that they get a good sampling of...

John had his MRI in the morning. This wasn't one of those "open" MRI's. It was just a tube that his head would slide in ...

Of course everything still seemed like a bad dream at this point. And, since they wake you up every couple of hours in the hospital, Yoshie ...

John had a bad reaction to the Ativan and started throwing up and hallucinating. And, he was still having a lot of seizures. It seemed like ...

The urgent clinic recommended that we go to Emanuel hospital, and off we went. I had no idea at the time if my insurance would cover this h...

John's seizures came as a complete shock to Yoshie and I. John was a completely happy and healthy kid before all of this started. He was...